“Never lose hope” is a flat, 2 dimensional view of the world that puts the weight of everything right on you when you are at your weakest point. Life is robbing you of every possession you have, your world as it is, your future, your time, your dreams and potential. Your grief and sorrow are not things you can actually share with others, they are uniquely your own and you have to carry them through each moment of the day.
You will have ups and downs, moments where you forget how dire things are, where you can almost feel like things are normal. And there will be moments where the fragility of life seeps into every interaction, every word, every breathe, and you are just desperately holding on to each memory you create.
Anyone going through a traumatic part of their life, you need to have the space, the comfort and the support to lose hope. Because you will. You will be robbed of hope.
That is where true strength hides. It is in those moments, when you have to face the reality of life, that you break. But then there is another moment after that. And another. And somehow you find life again. You find love again. You find smiles and laughter and you cherish the touch of friends who come to see you and memories shared and reminisced about. You will regain hope. You will find ways to sustain and continue for as long as you can. That is real strength and beauty.
Through everything we are going through, everything Aya has been dealing with, I keep telling her she is the strongest person I have ever known. She doesn’t believe me, and the reason she doesn’t believe me is because everything is impossibly hard to bear. I have seen her filled with rage, anger, despair, hopelessness and frustration, sometimes all at the same time. I have seen her deal with a medical system that treats patients as a number or statistic, incompetent doctors and nurses who clearly do not care about a patients wellbeing, and complete uncertainty that rushes into your life like a bottomless void that eats away all hope. I’ve seen the crushing weight of a prognosis that offers no hope.
And yet, weeks later, days later, and sometimes even moments later, she finds a way to laugh, to appreciate a ray of sunlight that falls on and warms her face, or delights at a delicious treat of gelato, even when moments before she was railing against the injustice of never being able to eat again. Flowers in bloom, a surprising story told by a friend, clouds that make a sunset truly magical, all of them moments of joy and happiness even at the darkest of times.
Life is impossibly hard. Life will steal your hope. I can guarantee that.
But if you are truly strong, if you are someone like Aya who somehow, no matter what life throws her way, cannot be anything but wonderful and positive and loving; not all the time, not without fail, but again and again, in the face of life’s cruelty, that is something amazing.
I know that I am not that strong. I am holding on and doing whatever I can because I love Aya and she inspires me everyday. Without that side of her, without seeing her smile each and everyday, in spite of the odds, in spite of the injustice, in spite of the constant pain she is suffering, I would never be able to carry any of this.